European Parliament Library

Death, dying and palliative care in children and young people, perspectives from health psychology, Alison M. Rodriguez

Death, dying and palliative care in children and young people, perspectives from health psychology, Alison M. Rodriguez
Bibliography note
Includes bibliographical references and index
index present
Literary Form
non fiction
Main title
Death, dying and palliative care in children and young people
Nature of contents
Responsibility statement
Alison M. Rodriguez
Sub title
perspectives from health psychology
"Death, Dying and Palliative Care in Children and Young People: Perspectives from Health Psychology examines the issues relevant to children and young people living with serious illness and their families by taking a closer look at the literature and knowledge around the processes of care, health, well-being and development through a health psychology lens. The text introduces readers to the general palliative and holistic care needs of children and young people along with the nuances of caring relationships. The chapters discuss the vulnerabilities encountered in living with serious illness and facing a shortened life prognosis, being at the end of life, and issues relative to the historical concept of the 'good death' or 'dying well', grief, and bereavement. The author examines how individual and familial experiences can be multi-layered, which can consequently influence perceptions and behaviours. The text therefore offers a deep exploration of the varied ways in which people draw on different resources to navigate their palliative care lived experiences"--, Provided by publisher
Table Of Contents
Cover -- Half Title -- Title Page -- Copyright Page -- Dedication -- Table of Contents -- Figures -- Tables -- About the Author -- Preface -- Acknowledgements -- Glossary -- Prologue -- Introduction -- Palliative Care Need -- Definitions and Models of Palliative Care -- Further Notes On Terminology -- Barriers to Palliative Care -- The Public Health Approach to Palliative and End of Life Care -- Coping -- Palliative Care Supporting Coping -- Health Psychology Perspectives -- Chapter Summary and Book Overview -- 1 The Underpinnings of Children and Young People's Palliative Care: Hospice, Spirituality, and Existentialism -- Introduction -- The Hospice Movement -- Palliative Care -- Contemporary Hospice Provision -- What About the Children? -- Spirituality and Palliative Care -- Spirituality and Existentialism -- The Influential Thinkers -- Søren Kierkegaard -- Friedrich Nietzsche -- Victor Frankl -- Jean-Paul Sartre -- Rollo May -- Frederick Perls -- Irvin Yalom -- Ernesto Spinelli and Robert Neimeyer -- Chapter Summary -- Key Issues -- References -- 2 Children and Young People's Palliative Care Needs -- Introduction -- Neonatal Palliative Care -- Comfort Care -- End of Life Care -- Palliative Care for Children and Adolescents -- Family Centred Care -- Cultural and Spiritual Needs -- Psychological Needs at the End of Life -- Transition -- Continued Developmental Needs Through Adulthood -- Physical Needs -- Cognitive Needs -- Psychological Needs -- Social Needs -- Spiritual Needs -- Chapter Summary -- Key Issues -- References -- 3 Caring Relationships in Children and Young People's Palliative Care -- Introduction -- Person and Family Centred Care -- Empathy, Sympathy, and Compassion -- Compassion and Palliative Care -- Self-care -- Mutuality in Care -- Empathic Communication -- Can We Learn to Be Compassionate?Social Media and Relationships With Self and Others -- Chapter Summary -- Key Issues -- References -- 4 The Perceived Vulnerabilities of Children and Young People With Serious Illness -- Introduction -- Truth Telling -- Is Honesty Always the Best Policy? -- Cultural Preferences -- Breaking Bad News -- What Do We Mean By Bad News? -- Why Is Breaking Bad News Important? -- Why Is Breaking Bad News Difficult? -- Emotional Labour -- Frameworks for Breaking Bad News -- Prognostic Disclosure to Children -- Professional Considerations -- Supporting Children and Young People With Serious Illness to Live Life to the Fullest -- Supported Decision Making -- Advanced Care Planning -- Futile Treatment -- Chapter Summary -- Key Issues -- References -- 5 Meaning Making Through Reflecting On Memories, Life Storying, and Legacy Leaving -- Introduction -- Biographical Disruption -- Meaning Making in Serious Illness -- Leaving a Legacy -- Psychological Development Considerations -- Generativity, Meaning Making and Legacy: Psychotherapeutic Interventions -- Therapeutic Life Review -- The Outlook Intervention -- Memory Banking -- Logotherapy -- Meaning Centred Group Psychotherapy -- Dignity Therapy -- Dignity Therapy for Young People -- Societal Meaning Making and the Death Café Movement -- The History of Death Café -- Digital Meaning Making and Grief Legacy -- Chapter Summary -- Key Issues -- References -- 6 The Lived Experience of Serious Illness -- Introduction -- Liminality and Embodiment -- Suffering and Total Pain -- Unrelieved Pain -- Lived Experiences and Quality of Life -- Instrumental Support -- Supporting Family Members -- Adjusting Boundaries -- Helping Individuals to Find a Silver Lining -- Post Traumatic Growth -- Health and Social Care Professional Resilience -- Palliative Care in Situations of Crisis -- The COVID-19 PandemicPalliative Care 'Patients' With COVID-19 -- Palliative Care for Non-COVID-19 'Patients' -- The Increased Reliance On Digital Health Technology and Its Impact On Palliative Care Provision -- Chapter Summary -- Key Issues -- References -- 7 Dying Well: Children and Young People's End of Life Care -- Introduction -- Cultural Conceptions of Death -- Death Anxiety: the Fear of Death -- What Factors Within Cultures Give Rise to Differences in Death Anxiety? -- Palliative Autonomy -- Individual Autonomy and Dignity -- Individuals With Neurodegenerative Conditions -- Children's Understandings of Death and Dying -- The Unspeakable Nature of Childhood Death and Dying -- The Death Positivity Movement -- Facing Death -- Funerals -- Chapter Summary -- Key Issues -- References -- 8 Grief and Bereavement in Children, Young People, and Families -- Introduction -- Contemporary Grief Theory -- Freudian Conceptions -- Kubler-Ross -- Continuing Bonds -- Bowlby and Murray Parkes -- Current Dominant Theories -- Age and Loss -- The Nature of the Bereavement -- Losing a Parent in Childhood -- Sibling Loss -- The Parental Loss of a Child -- The Loss of a Partner/spouse -- Spiritual and Cultural Aspects of Bereavement -- Meaning Reconstruction Following Loss -- Complications of Bereavement -- Prolonged Grief Disorder and the DSM-V -- Further Factors Influencing Bereavement Outcome -- Characteristics of the Bereaved -- Care-giving Experience -- Social Support and Family Functioning -- Preparation for and Place of Death -- Chapter Summary -- Key Issues -- References -- Epilogue -- Death Dying and Palliative Care: Health Psychology Perspectives -- In the Moment -- Looking Out Onto the Horizon -- Final Note -- Index